Shiny happy people
Posted by: mamaterapeuta on: July 31, 2009
Did you hear the news?????? We finally did it!!! ABR is coming to Chile next year!!!!!!!! I’m SO happy about it, specially since I’ll be the local organizator. A lot of families wanted to start but they just could not travel, so this is great news for a lot of people.
So, spread the news!
(this image is unofficial and doesn't replace ABR's logo)
Come meet the family
Posted by: mamaterapeuta on: May 10, 2009
Here is the chilean ABR family. We are 11 families already doing ABR, yesterday 7 of us got together to have a very nice reunion. 4 more are already sign in for next trainning.
This is just starting.
ABR in a chilean magazine
Posted by: mamaterapeuta on: May 8, 2009
Yeah, how cool is that! This saturday a 7 pages story was published about us and our ABR journey. It has had a big impact, tons of families have contacted me or the ABR center, some unfortunally are asking their PT and OT about it, imagine what are they going to hear…
But I’ve meet a lot of amazing families, some are very interested in ABR. Yes, the article did it’s work. All the time invested pay off and I am mostly happy because a lot of families now have HOPE. I believe love is not enough… You also need perseverance and hope, that’s my modo!
So, here is the link to the article in Revista Paula (most sell chilean magazine), but it’s in spanish… I have to tell you that Jacqui and Kathryn’s blogs are mentioned (yes, Moo and Ellie appear on a magazine in some country far far away). And that my daughter looks beautyful in the pictures, although the ones they put one line aren’t the best. Anyway, we are pretty happy about it and very proud that our story is a happy one 
Did you hear the news?
Posted by: mamaterapeuta on: April 6, 2009
Leonid Blyum started a blog! YES!
ABR and Beyond… Empowering the Special Parents of Children with Special Needs.
A must read!!! I found it at 3 o’clock in the morning, tomorrow I would most certainly by a sleepy head. I just HAD to read it all!
A parent is the only person who has time, dedication and true knowledge of a child. No professional has this combination.
Leonid Blyum
Arms XL
Posted by: mamaterapeuta on: March 23, 2009
I don’t know if I’ve mentioned here, but one of the most incredibles changes that Rocío’s has had with ABR has been losing the spasticity in her arms. Now she can extend them, she can touch her belly or her hair. She doesn’t do much yet with her arms, but this is I guess the first step to funtional arms.
Here is a video of Rocío on her bath time. You can see her extra large arms, or at least they look like that to us, because 1 year ago, they were glu to her body, folden, spastic. Now she can even take them out of the tub!!!!!
I must way, because of the Bree Van Der Kamp hidden and oppresed in me, that the brown line in the tub is because of the herbal baths that we give to Rocío as part of her fitotherapy.
Having say that, here is her video. Please feel free to comment!!! I’m missing your feedback
Working mom?
Posted by: mamaterapeuta on: March 12, 2009
Again, sorry for not writing in this blog as much as I do in my spanish blog. It’s quite hard to keep up both! But, I do have an excuse this time! Turns out ‘mamaterapeuta’ (therapist mother) is back on bussines… Well, not technically ‘back’ since I’ve never worked before, but you got the idea.
When Rocío was born, I was still studying. So her first year I finish my degree in Linguistics (yes, I’m a linguist), that gave me planny of time to be with her. Then college was finish and I realised that I couldn’t quite yet start working, so… I signed up for a Master in Linguistics. This year I’m supposed to get my degree, I’m working on my thesis right now, and I’m very happy about it.
I wasn’t thinking about starting to work yet. I was actually considering signing up for the Ph.D. after this! But… One day someone called me and asked if I could teach ‘Phonetics’ at X University. I actually said that I’d have to think about it, but I called back 2 minutes after and said YES!!! Phonetics is my ‘thing’.
So then I was happy about starting to teach and ending my M.A. But then I received another call… Could you be a part of a support group for premature babies? This time I answer right away: yes! It has been much more work than I thought, because the group is just starting and we are doing everything that this type of group requires. We haven’t help any parent yet, but our first reunion is in a couple of weeks, so I’m pretty excited about that too.
Then I was talking to the owner of the store that has made almost every special equipment we’ve used in the last 3 years. She is a friend at this point… And all of the sudden, we are starting a business together, one that would hopefully help people with special needs.
To make everything more exciting, I then received an email from a local Magazine asking me to do an interview. Go figure! I was TOTALLY excited about this, the journalist loved our story and I’m not sure how much she is going to write, but we’ve meet already 4 times and we are still not over.
So… One thing lead to the other, and now it turns out that I have 5 things to do. A meeting for every day of the week. And I’m a mother who wants to dedicate truly to her special needs child! This is not was I had on mind. My idea was this year just finish my M.A. nicely and hopefully write a book, which is something to many people are suggesting for me not to do it, and besides, I’d love to write it and it’s almost done in my mind.
Would I last doing all this??? Who knows… All I know is that this year is looking fantastic!!! And the funniest thing is that ‘mama terapeuta’ gets more jobs offers and is much more popular than me beeing just a linguist! How crazy is that? Deffinetly ‘insanity’ is just around the corner…
Kisses
Posted by: mamaterapeuta on: March 4, 2009
Enjoy her last achievement, my personal favorite.
Pretty girl
Posted by: mamaterapeuta on: February 13, 2009
Rocio smiling
Back home
Posted by: mamaterapeuta on: January 25, 2009
Our last ABR trip ended last thursday, since then we’ve been trying to get used to our new daily rutine. Everything is so different now! The good thing is that non of the new exercises requires us to stand up in one foot for an hour our more, jijiji, this is great. The even better thing is that we brought the ABR machine with us! We are really happy about it and lucky for us our daughter likes it.
We’ve been ding ABR for a year now and the changes we’ve seen are amazing. I dont have pictures yet, but they are truly amazing. We almost cried when we saw pictures of her first evaluation… What a skinny girl she was! Now she has a big back, a beautyful belly and she bears some weight on her arms, she is starting to sit, hold her head, talk… We love ABR.
Another interesting thing is that we spoke a lot with the trainners about our alternative treatment for our daughter abnormal braing waves (for me she doesnt have epilepsy). I love the fact that we are on hte same path here with ABR. They understand seizures very different from regular medicine (if regular doctors understand seizures at all…). The trainner have talked to Mr. Blyum about our treatments and they are nothing but supporting, for them is this kind of stuff that works. Not the meds, the meds only make things worst. Reeeaaaaally worst.
FYI, our alternative treatments are:
- special diet without casein (milk protein) and sugar (she eats a little bit of gluten, the one of the highest quality).
- One ABR exercises that helps her with brain fluids circulation
- Mud helmet for circulation also
- Cold frictions, that are a very useful natural treatment. Is like doing a ‘reboot’ to the body. If she has a seizure again, this is what will stop it.
- Tons of herbs to ‘feed’ the nervous system
And all this results in a clean and normal EEG almost inmediatly. With no side effects, just a happy, awaken and healthy girl.
So we have several reasons to be happy with ABR. Is nice to work ‘with’ someone and no ‘against’. Besides, all the kids we know in ABR are doing so much better, they’ve had an amazing progress. Our daughter not so much for the last period, but… She was hospitalized 3 times in 5 months, she was really sleppy with the epi meds and because of them she even had kidney issues that made her really sick. So this period has been really hard for her. To do just ‘as expected’ and not ‘great’ like last time, ir more that we can ask for. Is another thing that we love about ABR, that if you do the hours, you’ll see changes no matter what.
I hope next time will be different. Now that she is much better and that we have the machine, we are positive she’ll be much better.
Hi there
Posted by: mamaterapeuta on: January 20, 2009
It’s been a while since my last post, sorry for this. I guess is kind of hard for me to start a new blog, with all it means, when I have another that has many readers and such wonderfull people constantly reading and commenting. But… We have to start some where, I know.
We are right now at our third ABR session here in Buenos Aires. It has been all very quiet and exciting at the same time. Today we have our evaluation, which for me is the best part of the trainnings, is what give you strenght to continue, to go back home and pump like you havent pumped before…
I hope the evaluation goes well, we are a little scared because the last months has been crazy and we havent seen much change in her body. Since the epi diagnosis everything changed. This trip is the first we do with all of our epi treatments and it has been so exhausting. SO exhausting. But, the good thing is that we are half way to get our daughter off the epi meds and she is much better thanks to that. I’m sure this next period of ABR will be better because of all the trouble we are getting into.
So that’s it. I’ll share later how did the evaluation goes and some pictures when I have them. Hope some of you still read this blog
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